HOPE runners triumph in the London Big Half!

An interview with John Edgar from North Kilworth Wharf

I had mentally prepared myself - I am just the type to think, ‘ok - this is what I have to do, so let’s get started’.

“It is the biggest emotional rollercoaster I’ve ever been on." 

Hope Ambassador Alice Greaves wins the Furnley House Community Champions Award for Fundraiser of the Year

We recently met Ian for a coffee at the RVS café at the Leicester Royal Infirmary, his wife Ellena is coming to the end of a trial at the Hope Cancer Trials Centre and he is in remission having received treatment for prostate cancer at the Osborne Building. Ian generously donates to HOPE and wanted to share their story with us .

A Hope Against Cancer Press Release

We recently sat down with Hope’s longest serving volunteer Dorothy Tomlinson to talk a little bit about her time with the charity.

I believe that my experience with CLL (Chronic Lymphocytic Leukaemia) was fairly typical. It all began with an insurance policy blood test which showed a slightly raised white blood cell count that I needed to discuss with my GP. A referral to Leicester Royal Infirmary led to a diagnosis of CLL in July 2019. ‘A classic case’ the consultant said. I was 73 and it was a diagnosis by chance rather than by symptoms. The CLL was not that advanced and the doctors told me that there was no advantage to early treatment for this particular form of cancer. I was given reams of literature about the disease, which included plenty of optimistic comments about the success rates of the latest treatment, and I was put on Watch and Wait status. I soon learned that this is more realistically called Watch and Worry… I was also likely to be more prone to infection, and with COVID just around the corner, I became socially ultra cautious. I watched and I waited for three years, with blood tests every three months and ongoing discussions with my excellent consultant Dr Allchin. Dr Allchin was very clear about how the disease was progressing, realistic, but positive nevertheless. It was particularly helpful that my wife was able to attend all the sessions and that I could record them on my phone. In Autumn 2022 the tests revealed that it was time to start my treatment and I was given all the information I needed to make my own decision. I had two options. For me it was either take tablets for the rest of my life or a one-year treatment that would involve hospital visits. I chose the one year 'targeted therapy’ option. This is one of the new cancer treatments that research by centres such as the Hope Cancer Trials Centre has made possible. To begin I was given monthly infusions at the Osborne Day Centre at the Leicester Royal Infirmary. The nurses were superb, and the atmosphere was positive. This lasted approximately 6 months and while I was very tired for much of the time, there were not too many side effects. The treatment does affect your immune system so, in normal circumstances I would have needed to minimise social mixing, but the impact of COVID was having a similar effect anyway. The other part of my treatment was tablet-based which built to a crescendo of four large pills every day for ten months. This overlapped with the infusions, so that it was all completed within the same year. I received regular support from my consultant, from my CLL nurses (Sarah and Tina), from the Osborne Clinic nurses, and from the 24/7 Haematology helpline, and all this at an incredibly difficult time for every part of the NHS. My targeted therapy, which both enabled my immune system to recognise and fight the cancer, and attacked the disease itself, is a massive improvement on the earlier invasive treatments. To me, this clearly shows the progress made in cancer therapy thanks to research by organisations like Hope against Cancer. It was obvious how expensive all this is, especially as improvements are made in the effectiveness of treatment. Fundraising is a vital element in making these improvements possible. After I was told I was in remission I wanted to show my gratitude for the support I received at the LRI and donated to Hope Against Cancer to help support the incredible work of the Hope Cancer Trials Centre.

On 4th November, Leicester Racecourse held its newly revamped fireworks festival with live music, magic, a funfair and two impressive firework displays (one for children and a later one for adults). As the racecourse’s 2023 charity of the year Hope was provided with hospitality space in the boxes and Club room for which we sold tickets. It was a great space where our guests were then able to base themselves for the event. There was food provided by the racecourse and shelter from the intermittent rain both inside and from the covered balcony beyond. The Hope hospitality area had the finest view available that night with the firework display being set up in the track U-bend directly in front of us. Opening at 4, heavy clouds seemed to give way to patches of light blue and spots of red sky on one side, while remaining dark on the other. This was the way the weather went throughout the night, sometimes rain, sometimes not. Fortunately for all, when it did rain it didn’t last too long and it didn’t seem to dull the crowd's enthusiasm for the myriad of entertainment laid on by the racecourse. Looking out from the grandstand on the falling night it was anything but dark. In front was a well-lit stage for the live acts, and, later on, Fun House superstar, and DJ, Pat Sharp! Over to the right was the bright funfair with dodge-ums, and many a spiraling, scream inducing ride. And everywhere else there were children, and probably more than a few adults, swinging multi-coloured glowing sticks and swords. Behind the stand there were carts of food which filled the air with the beautiful smells of spices, burgers, fried onions, salt, vinegar and chips. Alongside these stood stalls selling jewellery, Christmas cards, sweets and much more. Some amazing Hope volunteers also ran a stall selling items alongside a very popular tombola of generously donated items. Other intrepid volunteers braved the weather and roamed the site in hi-vis Hope tops carrying collection buckets. And then there was the children’s area located near the winner's circle. A riot of laughter tumbled from various bouncy castles, the face painting area, and the magic show. At 7.30, Hope staff members, Barbara and Tim, took to the stage to introduce us to the crowd, to thank them for their support and to wish everyone a good night. And then the first display began. Purples, oranges, greens, reds, and blues fanned out into the sky and finished to a surge of applause from the captivated crowd. The second display, a few hours later, was even more impressive and provided a fine crescendo to a wonderful, and productive year for Hope Against Cancer as Leicester Racecourse’s charity of the year. The event would not have been possible without the huge efforts of Lucy, who stood by the front gate for many hours ensuring that our guests were identified and knew where to go, Barbara and Tim who were everywhere else helping our guests and volunteers, the incredible volunteers themselves - Matteo, Will, Dorothy, Julie, Charlotte, Lizz and Sally - and the brilliant racecourse team.